Doctor appointment today

Matt, Casey  and I saw Dr. Holen today.  He told us that Matt's tumor marker score went from 47.7 to 28.7.   Dr. Holen was questioning what Matt had changed!! The only thing he did was change his diet some.  He is trying to not eat sugar.  He is not drinking soda and sweets which he really misses! ( Not that he doesn't snitch once in a while a little sip of this or a little bit of that). He also started taking
Vitamin D, 10,000 IU.  He started eating organic foods and gluten free foods.  In the hospital he was able to do that as much but he did watch some of what he ate in the hospital.

Dr. Holen has not been able to talk to Dr. Sugarbaker yet.  He is waiting for Dr. Sugarbaker to call him back otherwise he is going to call him at the end of the week.

Dr. Holen found 2 clinical trials that Matt meets the requirements.  One of the clinical trial through UW Madison is taking the drug that made Matt break out with the rash all over his face.  This clinical trial is called A2D.  Matt was not thrilled with that idea.  This drug mixed with other drugs are only given IV way.  This means more trips to Madison if he were to do it.

The second clinical trial he found was MK2206.  This is a combination of 2 clinical trials that seemed to work in the past now put together and making a new trial.  AKT is a drug that is used to shrink cancer tumors and Patine was the other drug to block bad cancer cells.  Now they are combining them to make one trial that is taking 2 pills and being watched.  Matt is going to talk to Dr. Noel LoConte in Madison on April 19 to talk about these trials and make his decision if he wants to do one of them or none of them.

Dr. Holen is also getting a Dr. appointment at Mayo clinic first week of May for a second opinion.

Matt also took a bllod test for Adrenal insufficiency.  Dr Holen thought his face is swelled, he is still tired, diarrhea continues all signs of adrenal insufficiency.  He tested Matt for this and if he has it Matt would have
to take a pill and he will feel much better!!

Thank you for your continued prayers they are working!!